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Events Page

April 2022

Any Events that we may hold or any supporting organizations who are are kindly offering for us to participate or we have been invited to an event, we will be updating monthly on here.

Hopefully  now Covid laws are relaxing we may be able to resume organizing some monthly support meetups in each State, so keep an eye out on here and our facebook page and newsletter.

For any inquiries or to be put on our mailing list email –

NDIS providers – Hireup provide services to match support workers with patients, families and carers.


As discussed in our latest Arachnoid Cyst Awareness Australian Support Group Newsletter for May, this year we will be  able to join the organization Hireup for their monthly sessions on navigating the NDIS. Their online event is held the first Tuesday of each month. I will advertise the event each month with the topic. Hireup have a panel of experts who are able to answer any questions you may have.

The next Event will be Housing Options and the NDIS.

The event will be held  Tuesday the 3rd of May – 12pm to1pm Sydney Melbourne Canberra time. The link below enables you to register for this event.

Please when going to the link scroll down the page to read the requirements, as they ask if you can lodge your questions prior to the meeting so they can cover everything on this topic.

Thankyou so much HireUp for allowing us to link up for these support meetings.

For the month of June, The topic is what are complex and specialised supports, how does the NDIS fund these supports and how can you maximise your package to build a great support team.

This will be held on Tuesday the 7th June 2022. 12pm – 1pm AEST.

Please register and register your questions beforehand so the Hireup expert panel have time to cover everybody’s questions thankyou!

The next NDIS Meeting – to be held is Tues 5th July 12pm-1pm

What we can expect from Bill Shorten in order to reform and revitalise the NDIS. Unpack the jargon and changing legislation around plan reviews/ check ins /plan extensions.


August Hire up zoom NDIS meeting is to be held Tuesday 2nd August 12pm – 1pm

This Months Meeting is how to review a planning decision, and when a reviewable decision may be escalated to the administrative Appeals Tribunal (AAT)

This will prove very productive as if you are on the NDIS and find you need to put in a review for support need or a service that has been denied you will discover how to navigate your situation.

The September HireUp NDIS zoom meeting will be on Tuesday 6th of September. This months zoom meeting is NDIS for Autism.

We do have families who have both Arachnoid Cysts and Autism in their families, so it is hoped this can be helpful.

The Link is-

HireUps October NDIS zoom Meeting will be – Tues 4th October 2022 12pm – 1pm

This session has some good information for Parents, carer’s and those supporting someone on the NDIS.

The discussion will be held around the importance of support networks, how to build sustainable support networks and what options are available to support my dependents when you can no longer provide support.

The Link is –

Novembers NDIS Meeting is Tues 1st November 2022 12pm – 1pm

This session discusses what it means to be a registered provider with the NDIS vs an unregistered provider. It will also be discussed what it is to decide – to be registered with an agency to look after your whole plan or select your own supports but have an agency manage your funding. Or you look after and manage your whole plan yourself.

The Link Is –