To find us on facebook go to http://www.facebook.com/groups/acystawareaustsupportgroup/

On this page we are providing a list of Drs who have a knowledge of Arachnoid Cysts and how to treat them, we will add more professionals as we find them.

We have included Services and Support Organisations to help patients and to find the assistance they may be needing.

We have included links to two companies who manufacture a great range of safety helmets for patients who are having falls or seizures and on the children’s page you can find the children’s range of helmets.

Australian Neurosurgeons with a Knowledge of The Treatment Of Symptomatic Arachnoid Cysts.

At the present time we are trying to gather information through our Patients on their treating Neurosurgeon’s who have a comprehensive knowledge of treatment plans and surgery for the symptomatic a/c patient. To Date there are only a handful of n/s that we are presently aware of.

There have been some good neurosurgeons in the past who are now retired, so it is hoped more surgeons will start to research further into our condition, as the baby boomers and generation x enter later into their lives, they are displaying more permanent neurological symptoms that are yet to be understood.

There is a desperate need to find more surgeons as we do we will add to our lists, making it easier to find assistance for our patients, families and carers.

 

Download – Drs-who-Treat-Arachnoid-Cysts-In-Australia. (4)

 

The Australian Charter of Healthcare Rights

http://www.safteyandquality.gov.au/health/care

The Australian charter of healthcare rights describes the rights of patients, consumers and other people using the Australian Healthcare System.

 

Australia Wide Access to Brain Injury Services

http://www.braininjuryaustralia.org.au/service

Melbourne Pediatric Specialist Allied Health.

http://www.melbournepaediatricspecialists.com.au/allied-health/

This is made up of Pediatric Neurophysiologists, Physio Therapists, Speech Pathologists, Clinical Psychologists, Pediatric Occupational Therapists. Maternal and Child Health Nurse Practitioners and Clinical Consultants.

For children by referral from your general practitioner.

Carers Australia.

http://www.carersaustralia.com.au/

They have a wide range of information and supports for carers and also explains the National Disability Insurance Scheme. ( ndis )

ndis National Disability Insurance Scheme.

http://www.ndis.gov.au

The ndis supports people with a disability, their families and carers.

Brainlink

www.brainlink.org.au

Brainlink are dedicated to improve the life of people affected by brain conditions and providing support to families.

Synapse.

https://synapse.org.au

Brain Injury can result from any one of several causes. These include Traumatic Brain Injury from vehicle accidents , falls, concussion, degenerative neurological diseases, tumors, surgery, infection ect.

The affects of brain injury can vary from person to person, but commonly include difficulties with understanding, thinking, communicating, or controlling emotions. it may also cause loss of memory, short attention spans or fatigue.

Synapse services are available in Perth, Brisbane, Cairns, Sydney and Gosford.

The Synapse Carers program connects you with information, resources and practical Support, so that you can continue the caring role while navigating the daily changes and challenges of life.

The Synapse Information and Referral Service responds to enquiries on issues relating to brain injury.

Families4Families Inc.

Providing peer support for families impacted by Acquired Brain Injury across SA. http://families4families.org.au

Families4Families Mission is to assist people with acquired brain injury and their families to build resilience and live a good life through our innovative, volunteer, peer based model of support.

Brain Injury Association of Tasmania.

The Brain Injury Association of Tasmania (BIAT) is a not-for profit organization recognized as having specialist knowledge of brain injury. It was formed in 1998 to monitor and support the long term needs of people living with or impacted by brain injury in Tasmania. BIAT’s vision is to improve the quality of life for all Tasmanians impacted by brain injury.

http://www.biat.org.au

Rare Voices Australia

Rare Voices Australia is the national peak body for Australians living with rare diseases.

Rare Voices Australia

 

Hireup

https://www.hireup.com.au/

NDIS providers – Hireup provide services to match support workers with patients, families and carers

My Integra

My Integra are specialised in taking care of the day to day, time consuming parts of managing your plan and supports, their team of support coordinators, financial accountants and customer service representatives will help you to navigate and understand your NDIS plan and budget.

http://myintegra.com.au 

 

Victorian Patient Transport Assistance Scheme (VPTAS )

http://www.2.health.vic.gov.au/hospitals-and-health-services/rural-health

This scheme subsidies some of the costs incurred by rural Victorians when they travel more than 100km one way for specialist medical treatment.

Patient Assistance Scheme ( PATS) SA Health.

http://www.healthdirect.gov.au/australian-health-services

Subsidies for rural and remote SA.

Isolated Patients Travel and Accommodation Assistance. ( IPTAAS) NSW

http://www.health.nsw.gov.au/transport/pages

 

Assistance with Travel Costs to Receive Medical Care. ( PATS ) WA Patient Assisted Travel Scheme.

wacountry.health.wa.gov.au

The ACT Interstate Patient Travel Assistance Scheme (IPTAS) Health.

http://canberrahealthservices.act.gov.au

Put travel Assistance Scheme in search bar.

 

 

Patient Travel Subsidy Scheme (PTSS) QLD.

To help patients with travel costs.

http://www.qld.gov.au/patientsandvistorssupport services/travel-assistance

 

Patient Travel Assistance Scheme (PTAS) Hospitals. 

https://www.health.tas.gov.au/patient-travel

 

Patient Travel Assistance Scheme NT.GOV.AU

https://nt.gov.au/patient-travel-scheme-contacts

 

 

HeadSaver Head Protectors.

Are you worried about you or a loved one receiving damaging blows to the head from having a seizure or fall or from unsteady gait or involuntary movements.

We have been lucky to receive support from a company called Health Savers, they stock protective headwear called Head Saver and this support headgear comes with accessories that can go over the soft headcover such as beanies and hats.

Add to this, if our members purchase HeadSavers and put in the discount code of ACYSTAW at the checkout, you will automatically get a 10% discount.